Showing posts with label SPD. Show all posts
Showing posts with label SPD. Show all posts

Monday, October 31, 2011

We're on SPD Blogger Network!

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My recent post on bathtime battles is up on the SPD Blogger Network if you want to check it out.

As for me, I've gone "dark" the last couple of weeks for my annual dusting off of the sewing machine to make costumes for the boys. There's always at least one of them who waits until the last minute to decide what they want to be. On the flip side, this year one decided to wear last year's costume (and it still fits!) so there were only two costumes to make.

Thanks to my recent work schedule, it required some middle-of-the-night parties (if, by parties, you mean sewing like crazy amid bundles of fleece and flannel and lots of pins) but the costumes are DONE and IMHO they turned out good :).

Of course, my opinion really doesn't matter, but the people whose opinions DO matter, think they turned out good too :D. hehe

Pictures coming soon.
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Sunday, October 16, 2011

Bathtime battles

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Little Bitty has a love-hate relationship with bathtime. Usually somewhere in the realm of "strongly dislike."

Any mention of the dreaded bath and he's likely to screech "I not get WWWEEETTTT!!" and take off running. We'll be in for a wrestling match to get him into the tub and keep him there long enough to accomplish some semblance of cleaning. Somehow it seems like we end up soaked even more than him (I say "we" because he's getting bigger and when he goes ballistic dh and I have to tag team - one to try to keep him from climbing out of the tub while the other tries to wash him).

We've been through the battles of him not wanting to get wet at all, and got to a point where he could tolerate it. Sort of. Even a few drops of accidental water on his clothes and he starts stripping, but when it's on his terms, he actually enjoys the water. He loves to fill up the sink with water and play in it, and he loves to play in the swimming pool.

But bathtime? Not so much. At least not the actual *bathing* part. Because despite all the hysterics of trying to avoid getting IN the tub in the first place, once he's actually bathed and can get OUT, he suddenly decides he wants to stay in to play or "swim" and it takes just as much effort to get him out as it did to get him in. Sigh.

In our attempts to avoid the battles on the front end, we tried all kinds of things - bath toys, bubbles, even the occasional bribe (gasp!). What? I know we're not the only people who've tried to offer Thomas gummies in exchange for a wrestle-free bath. Not that it worked :/. For his part, he actually tried to climb into bed claiming "I tired!" rather than resign himself to a bath.

And then dh came up with one of his famous ideas. He gets full credit for this one because it never would have occurred to me.

Calgon.

I don't know if it's the scent, or the way it makes the water feel extra soft and smooth, or what, but suddenly Bitty actually likes taking a bath. In true dh-fashion, once we found that Bitty liked the Calgon, dh came home with pretty much every "flavor" they have. So now when it's bathtime we just ask him which Calgon he wants to use this time, he chooses one and helps us pour it into the water, and proceeds to climb into the tub, happy as a clam.

"Calgon take me away." lol (yes, Bitty actually read that on the container, guess they haven't changed their slogan over the years).

Dh also got Bitty a loofah in his favorite color (red!) to wash his body with. He likes the feel of it and is happy to scrub away. He still doesn't like having his hair washed, but thankfully he doesn't have much hair so I can do that in well under a minute. Short enough to say "oops I didn't mean to wash your hair, let me rinse that for you..." and be done with his face toweled dry again before he can get too worked up over it.

We've been down this road before so I'm not expecting that the bath battles are necessarily over for good, but am enjoying the reprieve while it lasts :).
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Saturday, October 8, 2011

National Sensory Awareness Month

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October is National Sensory Awareness Month!

Sensory Processing Disorder (SPD) is a neurological disorder in which the brain and the senses (all 8 of them!) don't work together as they should. Some examples of this include frequent sensory overload (when the brain is unable to filter out irrelevant sensory input), motor difficulties (when the brain isn't able to coordinate the muscles to respond appropriately to stimuli), and difficulty interpreting sensory input (when the brain doesn't recognize the body's signals, such as hunger).

Individuals with SPD may be under-responsive or over-responsive to sensory input. Some may be sensory avoiders, overly sensitive to certain textures or sounds. This can have major implications for daily living, as they may find only certain types of clothing or food tolerable, and may find some places too overwhelming to be comfortable there. Some may be sensory seekers, crashing into everything, climbing or hanging upside down all the time. Sometimes it depends on the situation, and it's possible to have both sensory-seeking and sensory-avoiding responses depending on the type of sensory input.

Most of the examples I gave are part of our experience with our boys - all three of them have SPD along with autism. It's quite common for people on the autism spectrum to also have sensory issues, although it's possible to have one without the other and there are many people with SPD who are not on the autism spectrum. Sometimes SPD symptoms may be misinterpreted as ADHD, for example when a sensory-seeker is in constant motion, running and crashing, in an attempt to get the sensory input they need, or has difficulty staying on task because they frequently need to be up and moving around.

One of the most helpful books I've read on the topic is "The Out-of-Sync Child" by Carol Kranowitz. I read it soon after our twins were dx'd and it really helped me to get a better idea of what they were going through, which in turn helped me to be more patient with some of their more challenging behavior.

If you're looking for (or want to share with others) some insight into what it's like to have SPD, I highly recommend this article. An excerpt from it quotes Stanley Greenspan:
"Imagine driving a car that isn't working well. When you step on the gas the car sometimes lurches forward and sometimes doesn't respond. When you blow the horn it sounds blaring. The brakes sometimes slow the car, but not always. The blinkers work occasionally, the steering is erratic, and the speedometer is inaccurate. You are engaged in a constant struggle to keep the car on the road, and it is difficult to concentrate on anything else."

I've included some links below, feel free to share additional resources in the comments.


Helpful articles:
What is SPD?
How does it feel? - a short but very insightful look at what it's like for those who have SPD
SPD Signs and Symptoms
SPD Red flags

Resources:
Sensory Processing Disorder
SPD Foundation
The SPD Blogger Network
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Thursday, October 6, 2011

Hiking trip

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We took the boys on a hike, which involved some fun trails, some pretty waterfalls, and a lot of stairs going up the mountain.



Bitty: "What iss hike-een?"
me: "Walking in the woods."
Bitty: "Are we walk-een in the woods?" (I can't figure out how to type the way he pronounces "walk" but it is so. darn. cute!
me: "Yep, we sure are."




These two practically ran up the mountain, but were nice enough to stop and wait for the rest of us here and there. In this one, Bearhug is showing me the waterfall, in case I was too busy huffing and puffing my way up the stairs to have noticed :).


Meanwhile Bitty wanted "uppers" most of the way, thankfully dh handled that although at one point he got tired of carrying and told Bitty "I'll carry you but you have to catch me first!" And Bitty took off after him, yelling "CAAHH--RRY!!!" lol




Leaving proof (I wish I had three arms!)


We continued on to the top. Of course Bearhug and Cuddlebug beat us by a mile but they were waiting at the top to give us a high five and congratulate us for making it (I think I heard them congratulating pretty much everyone else that made it too while they were waiting, lol).

They weren't even the slightest bit winded or tired. I sooo wish I had just a fraction of their energy! I took some "victory" pictures of them at the top of the waterfall :).




The view was beautiful, worth the climb.




~~~~~~~~~~~~~

The park where we went hiking is close to the pumpkin farm, so we had planned to visit the pumpkin farm again for a while before heading home. Unfortunately, the hike was too much overstimulation and Bitty wasn't up for anything else that day. We tried since we had told the boys we'd go, but we only lasted about a minute at the pumpkin farm before Bitty started kicking pumpkins and yelling angrily at them (something along the lines of "I don' WANNA SEE A PUH-KIN!!!") :(. We showed him the sign that says "no stepping on, kicking, sitting on the pumpkins" etc. and he yelled "I don' WANNA WEAD DA SIGN!!!" so we knew it was time to go and try again another day.

We did manage to pick up a couple of pumpkin pies before we left (because it's a long drive and we were already there) only because I offered to give Bitty "uppers" (carry him). Thankfully Cuddlebug and Bearhug were ok with leaving early, and we did make it out before Bitty reached full meltdown mode. Once we got into the car Bitty started to settle down.

~~~~~~~~~~~~~

This post has been submitted for this month's S-O-S Best of the Best Blog Carnival. The topic is "share a moment from your family life, whether it’s funny, loving, or just special." Our hiking trip gave us some much-needed family relaxing time and it was a fun activity for the boys. Even though we did end up having to cut the planned activities short and spend the rest of the day decompressing we made some good memories that day :).
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Sunday, September 4, 2011

Nature's playground

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Dh discovered a new park that has access to the river in a shallow spot that allows for walking and playing in the river and the nearby mud.

LOTS of fun for sensory seekers. :)

Dh took this one when he first took the boys to the park.

We all went to the park together on another day. I didn't have my camera so I took all of these with my phone.






Feeding the geese


Digging in the mud :)



Drawing in the sand (that's a picture of Kirby, lol)

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Sunday, July 24, 2011

Memorial Day weekend - swimming!

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We visited my SIL for Memorial Day weekend, and they have a pool so that is pretty much where the boys wanted to spend all their time. They LOVE the water, and as Barbara has noted, pool time is therapeutic. After repeated field testing of this hypothesis, my boys concur :).

Look at those smiles!!




Last year, Bitty didn't venture past the steps at the edge of the pool. This year, he got brave and did more exploring :).


He even let dh give him a ride, swimming all around the pool!



Cuddlebug and Bearhug practiced their swimming skills - they continue to improve! If you can't tell them apart, Bearhug is wearing blue swim trunks, Cuddlebug red.






They also had fun playing with the huge inner-tube :).




Little Bitty had a smaller floatie. At first, he wasn't interested because it was a turtle, but after much discussion I was able to convince him it was actually a green duck (ducks, after all, are one of his favorite animals!). :)




Looking forward to next time!




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I'm a mom of three boys on the autism spectrum, 11-yr-old identical twins and a 7-yr-old. My husband is a SAHD.

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