Sunday, August 11, 2013

A Mad Crush


We were at the store buying school supplies when Bitty found a little blue ball.

Dh and I were busy looking for the items on the list so we didn't notice the ball at first, until I heard Bitty tell one of the store employees who was walking by,

"This soccer ball has a mad crush on me and keeps following me around!!!"

He carried that little ball around the whole store and kept holding it up telling us (and anyone else who would listen) that the ball had a "mad crush" on him. We asked him where he heard that phrase (figured it wasn't Thomas) and he said, "Garfield, volume 15." He said it was like Garfield's ball of yarn.

Curious, I went looking through his Garfield book (Fat Cat 3-pack, volume 15) and sure enough:



Saturday, August 3, 2013

Special Needs Ryan Gosling - Week 1

Coming out of blog-hiatus at least for now to join in on Special Needs Ryan Gosling with Sunday at Adventures in Extreme Parenting. I found this meme last summer, right about the time she stopped doing it for a while (of course! lol) so I never had a chance to participate and thought it looked like fun.

And now she's brought it back, yay! :D

There was a time that we couldn't seem to go anywhere without making a scene. Sure, it may feel like people are staring because you're wrestling your child to keep him from running out into the parking lot, or chasing him down the aisles of the store way faster than you should attempt running because you're afraid to let him out of your line of sight, or dropping to the ground mid-stride in a vain attempt to catch him before he licks the sidewalk *again*. I mean, I can see why you might *think* that's why people are staring. But maybe, just maybe, Ryan is onto something and it's really because we're such hot mamas ;). It's possible, right?

In other news, a few words of encouragement: This stuff HAS eventually gotten better. The chasing, the wrestling, the public meltdowns and screamfests... it didn't happen overnight (not by a long shot) and it took establishing a familiar routine for pretty much everything and everywhere, and sometimes we still attract unwanted attention... but you know what? Even if the kids are loud they're *usually* not screaming. They may be flapping and jumping but they're not *entirely* pinging off the walls. One still likes to roll around on the floor (and yes, I make him get up), but he's *not* licking the floor anymore. They either hold my hand (the 8 y/o) or actually stop when I remind them to stop and watch for cars before walking to the parking lot (the 12 y/o's). I still feel that familiar wave of relief whenever we are back in the car or house (translation: safely contained) but generally the exhaustion level of taking everyone out is so. much. better.

Check out more SN Ryan Gosling here.

Adventures in Extreme Parenthood


Saturday, June 8, 2013

On hiatus...

I guess it's pretty obvious since I've posted all of one time in the last six months, but I'm making it official (if anyone's still reading at this point).

It's not that nothing is happening, actually we've been busy as usual.

Part of it is that after YEARS of sleep-deprivation-turned-insomnia, I am finally able to sleep. Maybe my body is trying to make up for all those years, but I find that I no longer have the energy for the late-night writing that produced a lot of my prior posts.

Part of it is that this was kinda-sorta supposed to be an autism blog, and at the moment I don't really have much to say about autism. I mean, it's always there and it influences so much of what we do and how we interact as a family, but it's there in the way that oxygen is always there and I don't always notice it anymore. Maybe that's because all of our children are autistic so it's all we know. Developmentally, we seem to have reached a plateau of sorts, so we are still dealing with a lot of the same stuff we've been dealing with, and I don't have much to say about it that I haven't already said.

Part of it is that as my twins get older (they just turned 12 if you can believe that, they were not quite 7 when I started the blog!), I feel like it's not just my story to tell anymore. I mean, thinking ahead 5 or 10 years, it's one thing for them to find stories I have written for the world to see about when they were little, but I'm not sure how they'll feel about me continuing to write about them as they approach adolescence (I can't believe I just used that word in reference to my babies, ack). There's some stuff I still feel comfortable sharing, but not as much as when they were younger (and not as much as I still feel I can share about Bitty).

I'm taking lots of pictures but I haven't had time to post many of them yet (and after enough time passes it seems weird to go back and post them but I may eventually do it anyway). It might have something to do with the fact that my computer has been all but taken over by a certain Little Bitty who loves to play Roblox and take pictures of Thomas faces (on the computer) with my phone. When I do manage to get some computer time, it is usually spent uploading and cropping these for him:

I'm not ready to give up on the blog just yet - I still like having a place to journal, to share and connect with others, and I enjoy writing even if I'm in a bit of a writing funk right now. So I'm just going to call it a hiatus and take a break.

In the meantime, I'll still be around and reading although if I'm on my phone I may not comment (sorry, typing on the phone makes me batty sometimes).

You can also find me at the links below and I'd love to connect there as well (although, full disclosure I'm rarely on Twitter or Pinterest, they get a little overwhelming!).

Everyday Adventures FB Page

...and in case I'm not back for a while I want to say that I'm grateful for the friends that I've "met" through blogging. Ya'll are awesome and it means the world to know we're not alone in this journey. xoxo


Saturday, April 6, 2013

So aware, we're UNaware

Have you ever seen the movie, "The Three Amigos"? It's a *really* cheesy movie from back in the 80's, and there's a scene where the amigos say something along the lines of "he's SO famous, he's IN-famous!" (if my mom is reading this, and she may be the only one still checking my much-neglected blog, she's cracking up right now because she totally remembers that quote)

That's kind of how I'm feeling about autism awareness at the moment. We've been living it for almost 12 years (although we've only known it for almost 9). We're 3 for 3 when it comes to children on the spectrum, so it's all we know. We're SO aware, we've become UNaware. And by that I mean, autism is so deeply woven into every aspect of life that it is hard to distinguish unless you're looking for it. We know it's there, we just don't notice it that much anymore.

It's in the choices we make as a family - where we go, where we don't go. What we do, and what we avoid doing.

It's in our home. The furnishings we never accumulated because our boys need open space and minimal hard corners, the furniture we no longer have because it crumbled under the strain of three very exuberant boys using it for a playground, a canvas, a railroad, a trampoline, etc. The ongoing home repairs (thankfully dh is good at that kind of stuff) because things it never would have occurred to me could get broken, do indeed get broken. Like the towel rack over the sink that was ripped out of the wall when someone climbed up there and STOOD on it.

It's in our interactions, because it's an integral part of how my sons perceive the world and communicate with those around them. It's in the way my older boys often talk to us in numbered lists ("I have three things to tell you, number one is..."), how they prefer to quantify things ("I'm 82% done with my homework") and offer detailed dissertations to eventually say what technically could have been summed up in 2-3 words (ironic considering the time and effort involved in trying to get them to use words at all when they were younger). It's in the way my youngest has developed his own unique brand of "pretend play" in which he pulls everyone into his world whether they want to be or not (lol, certain big brothers who have never really enjoyed pretend play and are very literal thinkers protest their little brother's forays into fantasy every step of the way).

All of these little fingerprints of autism are a part of what makes my family, MY family. It doesn't define us, but it is a part of who we are. My precious boys, our quirky conversations, the eardrum-defying noise level that signifies that everyone is home and accounted for (and awake). I wouldn't change any of it.


This is what autism looks like at our house... pretty darn handsome if you ask me :).


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I'm a mom of three boys on the autism spectrum, 11-yr-old identical twins and a 7-yr-old. My husband is a SAHD.


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